Afrikindness Neurodiversity Community Programme (ANCP)

In 2023, our dedicated Afrikindness research associate, a Clinical Psychology Graduate student from Newcastle University, undertook a groundbreaking study addressing the pressing issue of delayed autism diagnoses among Black African parents in the United Kingdom. The research uncovered a complex interplay of awareness, and cultural and religious factors significantly contributing to these delays, shedding light on a nuanced understanding of the challenges faced by this community. This study, unlike previous research endeavours, highlighted specific obstacles faced by ethnic minority groups, particularly within the Black African community. It revealed a distinctive perspective on the intricate connection between autism awareness, cultural influences and accessing autism diagnoses by Black African parents. 

The findings underscored the critical role of awareness, or lack thereof, as a significant barrier to accessing timely autism diagnoses. Varying levels of awareness and misconceptions surrounding autism were evident among the participating parents, contributing to delays in recognizing and seeking diagnosis for their children. Moreover, the study brought to light the impact of culture and religion on parents’ responses to their child’s atypical behaviours, with instances of initial resistance, denial, and scepticism reported. Beyond awareness issues, the research also uncovered challenges related to the limited knowledge of available services among Black parents, leading to aimless searches and exposure to potentially harmful information. In light of these findings, it is evident that enhancing autism awareness has the potential to significantly reduce delays in accessing diagnoses, ultimately improving the well-being of autistic children in the Black and ethnic minority community.

To address these challenges, Afrikindness has developed the NEURODIVERSITY COMMUNITY CAMPAIGN PROJECT. The findings from this research have ignited our dedication to crafting specialized programs and resources tailored to the unique needs of ethnic minority families with neurodiverse children. Our goal is to design and implement culturally sensitive education and outreach initiatives that resonate with these communities starting from Leeds and Yorkshire and hopefully to be replicated across England. 

There is a pressing need for community-centred initiatives that deliver culturally attuned education and outreach programs. Our intervention is specifically tailored to meet the unique needs of African and ethnic minority families. The key objectives of these programs will focus on increasing comprehension of autism, reducing associated stigma and feelings of shame, and providing families with essential resources and support as they navigate the journey towards diagnosis and treatment for their child. By investing in these initiatives, we have the opportunity to make a lasting impact on the lives of Black African and ethnic minority parents and their autistic children, fostering a more inclusive and supportive community.

The in-person and virtual workshops will offer a comprehensive curriculum covering essential aspects of neurodiversity, fostering a deeper understanding and challenging societal biases. Key components include:

• Demystifying Neurodiversity: Breaking down complex concepts surrounding neurodiversity to facilitate better comprehension among participants.
• Autism Awareness: Providing participants with insights into the spectrum of autism, its characteristics, and various presentations.
• Debunking Myths about Neurodiversity: Addressing prevalent misconceptions and stereotypes, fostering a more accurate understanding.
• Challenging Bias and Stigmatization: Exploring the impact of biases and stigmatization on autistic individuals and families, promoting empathy and inclusivity.
• Exploring Pathways to Accessing Diagnosis: Guiding participants through the practical steps involved in seeking and obtaining an autism diagnosis.

• Mental Health for Parents: Recognizing and addressing the mental health challenges faced by parents of neurodivergent children.
• Self-care: Empowering parents with strategies for self-care to navigate the unique demands of raising neurodivergent children.
• Cultural Awareness: Enhancing cultural sensitivity and understanding the intersection of cultural factors with neurodiversity.

One-on-One Sessions for Parents: Offering personalized support through our parent coaching platform.

• Organization World Cafe and Exhibitions: Providing a platform for organizations to share resources and information.
• Syndicate Sessions: Facilitating small-group discussions for deeper engagement and personalized insights.
• Interactive Play: Incorporating interactive activities to make learning engaging and enjoyable.
• Course Review and Recap: Reinforcing key learnings and allowing participants to reflect on the content.

Awards, Sponsors Corner: Acknowledging achievements and recognizing the valuable contributions of sponsors.

This training is open to:

• Parents with neurodivergent children 
• Community leaders, Religious institutions, and Local authorities seeking to understand neurodiversity with inclusion
• School leaders seeking to understand neurodiversity with children of colour
• Caregivers, including grandparents and childcare providers
• Minority parents